In the face of a rare autoimmune neurological disorder known as Stiff Person Syndrome, iconic singer Celine Dion unveils her inspiring journey. Diagnosed in 2022, Dion has dedicated herself to understanding and living with the condition. She shares, “I’m well, but it’s a lot of work. I’m taking it one day at a time.”
Acknowledging the ongoing nature of the disease, Dion remains steadfast in her approach. “I haven’t beat the disease, as it’s still within me and always will be,” she says. “I hope that we’ll find a miracle, a way to cure it with scientific research, but for now I have to learn to live with it.”
Embracing a rigorous routine, Dion undergoes physical, athletic, and vocal therapy five days a week. “I work on my toes, my knees, my calves, my fingers, my singing, my voice… I have to learn to live with it now and stop questioning myself,” she explains.
Dion’s resilience stems from the unwavering support of her family, children, and fans. She’s grateful for access to excellent medical care, stating, “I have this strength within me. I know that nothing is going to stop me.”
Regarding her return to touring, Dion remains cautious. “I can’t answer that… Because for four years I’ve been saying to myself that I’m not going back, that I’m ready, that I’m not ready… As things stand, I can’t stand here and say to you: ‘Yes, in four months’ [I will return]. I don’t know… My body will tell me.”
Through it all, Dion’s determination is unwavering. “It’s morally hard to live from day to day,” she says. “But there’s one thing that will never stop, and that’s the will. It’s the passion. It’s the dream. It’s the determination.”
